Support Groups List

There are A LOT of support groups out there. Below is the start of a list. Please feel free to comment with additional groups you've found and I'll add them to the list :)

EDS/POTS Combination Online Support Groups

• Ehlers-Danlos Syndrome (EDS) & Comorbidities International, Info &-Support

• Ehlers-Danlos Support Worldwide EDS/POTS/MCAD/Chiari

• Inspiring Zebras (EDS,POTS and other Chronic Illnesses)

EDS In Person Support Groups

• The Ehler's Danlos Society
  • The groups I facilitate aren't listed yet but they are in Wisconsin 
    • Milwaukee
    • Madison 

EDS Online Support Groups

• Search for EDS or Ehler's Danlos Syndrome and your local area/state. This is a great source to find specialists that understand EDS in your area
  • For Example, Wisconsin - Ehler's Danlos and Joint Hypermobility Wisconsin
• EDS Life Hacks
• Ehlers-Danlos Worldwide
• Ehlers-Danlos Syndrome Support Group
• OPEN Ehlers Danlos Syndrome Group
• Ehlers Danlos Syndrome
• Ehlers-Danlos Support Group
• EDS - Zebras need Zebras  
• EDS Today (Ehlers Danlos Syndrome)

POTS In Person Support Groups

• Dysautonomia Support Network 

• Wisconsin (The groups I facilitate)
  • Milwaukee
  • Madison

POTS Online Support Groups

• Dysautonomia Support Network
• POTS
• Fight against POTS (postural orthostatic tachycardia syndrome)
• POTS AWARENESS & SUPPORT GROUP.( Postural Orthostatic Tachycardia Syndrome)
• POTS CONNECTION
• Postural Orthostatic Tachycardia Syndrome (POTS)
• Postural Orthostatic Tachycardia Syndrome
• POTS (Postural Orthostatic Tachycardia Syndrome) Support Group
• Living With Pots - Alternative and Natural