Hi.

Welcome to my blog.

My goal is to help provide EDS & Dysautonomia patients with resources to discuss with their healthcare team.

Jul 30

Jul 30 Breast Augmentation: Part 1 - Consults

EDSZebraPOTS

My Personal Journey

May 28

May 28 Homeopathic Trial & Error

Spoonie Warrior

POTS - Tips/Tricks/Ideas, My Personal Journey, EDS - Tips/Tricks/Ideas, Patients

May 25

May 25 Guest Blog! Fibromyalgia & Radical Acceptance

Penelope White

Guest Blogger, Patients

Guest Blogger! Penelope White shares her experience with Fibromyalgia and her journey to Radical Acceptance.

May 3

May 3 Meds & Moving to California

EDSZebraPOTS

My Personal Journey

May 1

May 1 Traveling pains

EDSZebraPOTS

My Personal Journey

Update from October 2017 (Super super late! It’s May of 2018 now. OOPS!)

Oct 14

Oct 14 I MOVED!!

EDSZebraPOTS

My Personal Journey

Aug 25

Aug 25 Road Trip to San Diego

EDSZebraPOTS

My Personal Journey

Jul 28

Jul 28 Frenulectomy, Road Trip, & Med Issues

EDSZebraPOTS

My Personal Journey

Jun 15

Jun 15 Doctors, Medications, and $$$

EDSZebraPOTS

My Personal Journey

May 10

May 10 Future Appointments and a Medication Issue

EDSZebraPOTS

My Personal Journey

Upcoming doctor's appointments (quite a few) and trying to create a medical plan of action.

May 10

May 10 Coexisting Conditions to Look into with Your Doctor

EDSZebraPOTS

Patients

Potential coexisting conditions to discuss with your medical team.

May 8

May 8 Guest Blog - Spring Allergies

Tammy Kosbab

Guest Blogger

Guest Blogger - Tammy Kosbab on Spring Allergies & MCAD

May 7

May 7 How to Make Your Invisible Disability a little More Visible

EDSZebraPOTS

Patients, POTS - Tips/Tricks/Ideas, EDS - Tips/Tricks/Ideas

Making the invisible a little more visible.

Apr 29

Apr 29 Next Steps

EDSZebraPOTS

My Personal Journey

The next steps after meeting with my neurology team.

Apr 22

Apr 22 POTS Awareness Images

EDSZebraPOTS

Patients

Images to help explain POTS

Apr 19

Apr 19 POTS Edition - Laughter is the best medicine, right?

EDSZebraPOTS

Comic Relief

It's time for a good laugh :)

Apr 17

Apr 17 Pain Relief at Home

EDSZebraPOTS

Patients, EDS - Tips/Tricks/Ideas

Pain relief ideas for at home

Apr 16

Apr 16 Chronic Illness Dating: When is the right time to come out of the Medicine Cabinet?

EDSZebraPOTS

Patients, My Personal Journey

Things to keep in mind in the dating world.

Apr 15

Apr 15 Ehlers Danlos - Bedroom Updated December 2019

EDSZebraPOTS

Patients, EDS - Tips/Tricks/Ideas

Tips for comfort in your bedroom

Apr 13

Apr 13 Ehlers Danlos Braces Updated April 2021

EDSZebraPOTS

Patients, EDS - Tips/Tricks/Ideas

A list of braces for EDS - I will update as I find more.