Hi.

Welcome to my blog.

My goal is to help provide EDS & Dysautonomia patients with resources to discuss with their healthcare team.

All tagged Postural Orthostatic Tachycardia Syndrome

May 16

May 16 Wheelchair Series - Part 4 - Seating Clinic Disappointment

EDSZebraPOTS

My Personal Journey, Patients, EDS - Tips/Tricks/Ideas, POTS - Tips/Tricks/Ideas, Wheelchair

May 13

May 13 Wheelchair Series - Part 3 - Used Ki Mobility Wheelchair

EDSZebraPOTS

My Personal Journey, Patients, POTS - Tips/Tricks/Ideas, EDS - Tips/Tricks/Ideas, Wheelchair

Apr 22

Apr 22 Wheelchair Series - Part 2

EDSZebraPOTS

My Personal Journey, Wheelchair, Patients

Apr 17

Apr 17 The Beginning of the Wheelchair Series

EDSZebraPOTS

My Personal Journey, EDS - Tips/Tricks/Ideas, POTS - Tips/Tricks/Ideas, Patients

Dec 13

Dec 13 October 2019 Update

EDSZebraPOTS

My Personal Journey

May 5

May 5 Core Body Braid Review & Discount Code! UPDATED April 2022

EDSZebraPOTS

EDS - Tips/Tricks/Ideas, POTS - Tips/Tricks/Ideas, My Personal Journey

Mar 27

Mar 27 Low Spoons or Rainy Days

EDSZebraPOTS

My Personal Journey

Sep 13

Sep 13 Give me a break. A Potty break.

EDSZebraPOTS

My Personal Journey

Sep 13

Sep 13 Specialist...or lack thereof

EDSZebraPOTS

My Personal Journey

May 10

May 10 Coexisting Conditions to Look into with Your Doctor

EDSZebraPOTS

Patients

Potential coexisting conditions to discuss with your medical team.

Apr 11

Apr 11 Upcoming Specialist Appointment

EDSZebraPOTS

My Personal Journey

Before my appointment with my Neurology Specialist.

Mar 27

Mar 27 Salty Drink Ideas

EDSZebraPOTS

Patients, POTS - Tips/Tricks/Ideas

Different salty drink ideas with their cost, sodium, and potassium levels