Hi.

Welcome to my blog.

My goal is to help provide EDS & Dysautonomia patients with resources to discuss with their healthcare team.

All tagged ehlers danlos syndrome

May 16

May 16 Wheelchair Series - Part 4 - Seating Clinic Disappointment

EDSZebraPOTS

My Personal Journey, Patients, EDS - Tips/Tricks/Ideas, POTS - Tips/Tricks/Ideas, Wheelchair

May 13

May 13 Wheelchair Series - Part 3 - Used Ki Mobility Wheelchair

EDSZebraPOTS

My Personal Journey, Patients, POTS - Tips/Tricks/Ideas, EDS - Tips/Tricks/Ideas, Wheelchair

Apr 22

Apr 22 Wheelchair Series - Part 2

EDSZebraPOTS

My Personal Journey, Wheelchair, Patients

Apr 17

Apr 17 The Beginning of the Wheelchair Series

EDSZebraPOTS

My Personal Journey, EDS - Tips/Tricks/Ideas, POTS - Tips/Tricks/Ideas, Patients

Dec 13

Dec 13 October 2019 Update

EDSZebraPOTS

My Personal Journey

May 5

May 5 Core Body Braid Review & Discount Code! UPDATED April 2022

EDSZebraPOTS

EDS - Tips/Tricks/Ideas, POTS - Tips/Tricks/Ideas, My Personal Journey

Mar 18

Mar 18 Overactive Bladder - Medication Update

EDSZebraPOTS

My Personal Journey

Nov 10

Nov 10 Specialist - Finally!!!

EDSZebraPOTS

My Personal Journey

Sep 17

Sep 17 My 1st Podcast

EDSZebraPOTS

My Personal Journey

Jul 30

Jul 30 Breast Augmentation: Part 1 - Consults

EDSZebraPOTS

My Personal Journey

May 1

May 1 Traveling pains

EDSZebraPOTS

My Personal Journey

Update from October 2017 (Super super late! It’s May of 2018 now. OOPS!)

Apr 11

Apr 11 Upcoming Specialist Appointment

EDSZebraPOTS

My Personal Journey

Before my appointment with my Neurology Specialist.

Mar 28

Mar 28 Salty Snacks

EDSZebraPOTS

Patients, POTS - Tips/Tricks/Ideas

A list of salty snacks

Mar 27

Mar 27 EDS/POTS Support Group – Madison Area

EDSZebraPOTS

Support Groups

Mar 27

Mar 27 EDS/POTS Support Group – Greater Milwaukee Area

EDSZebraPOTS

Support Groups

Milwaukee Area EDS/Dysautonomia Support Group